All posts filed under: disabled

A Look at “Zero to Hero” When You Feel Like a Zero

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I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “You get to work from home! That’s so great!” Whenever people say that, I never know how to respond. Like, yeah, of course, it’s great to be home all the time… I guess. I forget what day of the week it is. I wear sweatpants. I shower when I want to shower. I work in the living room from my recliner or in the office, whichever is more comfortable. The television is on for “background noise.” I keep the cat and bunny from murdering each other. I also have very little human interaction other than Slack, Gchat, Facebook, or email. I’m a slave to the elements, meaning my Quell says, “Today’s weather may worsen your pain. Consider increased Quell use.” I’ve gotten that warning for the past two weeks straight. If it’s cold or raining, I stay …

How to Get Work Done When You Have a Chronic Condition

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Working while dealing with chronic pain is another task on the To-Do List (or so I keep trying to tell myself). I used to crank out work at such a high level, and now I feel so much slower, like I’m trudging uphill through molasses in January. What used to be a machine is now rusted, rickety, with nuts and bolts rattling and clinking down upon the floor. But things still need to get done. Jobs and projects require my attention, divided though my attention may be. How do I focus and get through my docket when my pain tries to pull me in so many directions? Here’s what’s on my docket these days (WARNING: COLLUSION!): day job with Enjuris, editing/writing side gigs, legal side gigs (gotta love this “Gig Economy“), writing a book with my father about his work, volunteering for the MetroWest Opera as a board member (and I need to do the annual taxes), volunteering for the Pain News Network as a columnist and a board member (gotta do some writing), and on top of all that, I …

Everybody Has Something Wrong With Them

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Everybody has something wrong with them. I don’t care who you are or how many marathons you’ve run or how loud you are about it, but literally everybody on this planet, no matter how young or old, has something inside that is actively working against them. That young boy bicycling to school has Type I diabetes. The teacher shepherding students into the classroom has arthritis. The school bus driver has sciatica that runs down her right leg. The mailman has a limp because his hip gave out after twenty years of walking his route. The old woman shuffling down the sidewalk has cataracts, rheumatoid arthritis, and skin cancer from the days of tanning with baby oil. If something isn’t wrong with us when we’re born, something will go wrong. As soon as we are born we start to die, and little chips of us are broken away year after year by means of illnesses and sprains and accidents and cancers. Some people don’t even know anything is wrong yet. Two guys see their coworker struggling …

Guest Post: Water Exercise for Chronic Pain Relief

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Chronic pain comes in many forms: aching in the joints, dull burning in the muscles, or shooting pains throughout the body. While some bodily pain after an injury or surgery is normal, pain that persists beyond average recovery time or that arises inexplicably is considered chronic. The National Institute of Health (NIH) defines chronic pain as “any pain lasting more than 12 weeks.” These pains can be sharp or dull, localized or felt throughout the body. The American Chronic Pain Association (ACPA) widely recommends exercise therapy, or “active therapy,” to increase the range of motion, strength, and flexibility and to enhance the quality of life. Though resting the body may seem like a tempting option, doctors have come to recognize that inactivity typically exacerbates symptoms. Dr. Edward Laskowski, a rehabilitation specialist at the Mayo Clinic, explains, “[w]hen you rest, you become deconditioned — which may actually contribute to chronic pain.” Whether you suffer from fibromyalgia, arthritis, migraines, Crohn’s Disease, multiple sclerosis, or another physically debilitating illness, remaining active is paramount to managing pain. Exercise for …

Pain News Network: Media Hysteria and the Opioid Crisis

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Hello, my darlings! Check out my latest column for the Pain News Network! _________________________________________________________________ I recently received this email from a family member: Hi Jen, I was listening to a thing on pain medication and why prescription meds are so dangerous. They turn the receptors off in the brain and the person forgets to breathe.  That part is a totally separate thing from the pain. Dr. Sanjay Gupta was on talking about it. I think that is a very valid argument about overuse of pain meds. For example, Prince had very valid issues to use the meds and also lived a very clean life style. If he overused, it goes to follow that someone who doesn’t lead a clean lifestyle is in more danger. It’s not the meds as much as the brain receptors. The breathing part is scary. So I’m not such an advocate anymore…..unless you can tell me this isn’t true and why he would say that. I love you and don’t want anything to happen to you. Xoxoxox I got mad after …

The Pill Suite is Pretty Sweet

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If you’re like me (delightful, fierce, and bothered by various physical ailments), then you have a ton of pills. Let’s take a look at what I consume on a daily basis: Tramadol (50 mg every 4-6 hours as needed) Cymbalta (80 mg, 20 mg in the morning, 60 mg at night) Valium (5 mg, as needed) Zyrtec (every night for my Eosinophilic Esophagitis) Prilosec (40 mg per day) Carafate (two teaspoons 4 times a day) Calcium (RX-strength) Vitamin D3 (RX-strength) Vitamin K2 (RX-strength) …I’m honestly losing track. Here’s the nonsense I deal with each morning (and these are only the morning, I didn’t get a picture of the nightly regimen): I can organize the hoard pretty easily using one of these sweet babies: Those pill cases can be difficult when going somewhere overnight or for a few days. At this point I’m an expert at telling pills apart (and if I’m only 99 percent sure, I’ll Google it to be responsible), but it’s hard to say, “Okay, this group is for the morning, this group is for the …

Pain News Network: Recovering from Spinal Surgery

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Check out my latest column for the Pain News Network! For those of you playing the home game (i.e. following my blog), I’ve been recuperating from a cervical discectomy and fusion of C4-C5. That was February 19. I’ve been recovering in an amazing fashion, much faster than my first fusion of C5-C6. Just north of a month later, I also had thoracic injections at T-11 through L-1. I was far more scared of this procedure than the fusion — and I’ve had injections before, so it was nothing new. I knew exactly what was going to happen, but I didn’t know how my body would react. Why? Read on. My Abbreviated Back Story (No Pun Intended) My injuries have followed a strange road. When my mom’s car was stopped in traffic in 2004, we were rear-ended at 65 miles per hour. I was seventeen. I broke my spine in four places: T-11 through L-1, but also a facet joint that wasn’t found until a year later when it had calcified over a cluster of nerves. …

Guest Post: Bio-Integrative Therapy: Modern Medicine Has a Health Problem

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Full disclosure, readers: This guest post was written by my father, Dr. Jay Kain. He’s starting a new business venture that combines motion capture technology with his proprietary work, Bio-Integrative Therapy, and I am hellishly proud of him. The therapy (speaking from experience here) is very gentle, hands-on manual therapy that works to promote structural harmony within the body. The motion capture work quantifies the immediate results the therapy provides (e.g., you have a terrible golf swing, you get some treatment, and then the mo-cap immediately shows results in increased range of motion. How’s that for fast healing?). He’s finally getting on board with technology, so here’s his foray into the blogging world! He is also on Twitter as @bio_integrative. Modern medicine has a health problem. It sounds ridiculous, doesn’t it? Western medicine is more advanced than ever before. More importantly, it now defers to Eastern medicine when necessary, like pain management doctors recommending yoga, meditation, acupuncture, and the like. Physical therapists use cupping techniques that were created in China centuries ago. Cardiologists team up with …

Pain News Network: Dressing for Comfort and Success

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Check out my latest column for the Pain News Network! Comedian Patton Oswalt once apologized for all the times he made fun of sweatpants. “I thought the pinnacle of mankind would be Mars colony or teleportation. Nope! Sweatpants! That was it. Sweatpants!” he said. “We started with fire and the wheel and writing, agriculture, penicillin, sweatpants. Everything else, we’re just on the downward slope. We did it. We’re all done.” Oswalt went on to say how one never puts sweatpants on after showering; they’re always worn over “un-deodorized flesh,” with which I disagree. Why? Because I just took a shower and then put my sweatpants back on. (That’s not the point of this post.) If you are one of the approximately 60 million people in the world with chronic pain, you know that regular clothes can just hurt. It becomes a burden to wear something as regular as jeans. We operate by feel alone. What is comfortable? What doesn’t compound our pain? What feels good against our tortured skin? Sweatpants! This obviously was a problem …

The Quell Pain Relief Device: 8 Months Later

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Hi, everyone. It’s been quite some time since I’ve shouted into the electronic void. I had such grand plans, too. At the end of 2015 I left my full-time job as an associate attorney. My bosses did so much for me, but the way our office was set up, having me work part-time just wasn’t possible. The month of December was my slow transition to working from home. I still have my freelance editing work, but primarily I am home. In my sweatpants. With my cat. I figured I would use this time to write a ton of blog posts, start my new website (to be formally announced at a later date), do yoga four times a day, walk an hour every day, finally go to the gym, hang out with my cat, wake up at 5 a.m. during the work week, do some personal writing for the first time in years, etc. I had grand, unrealistic plans. At the very least I still plan to discuss transitioning to working from home, but that’s not the point …