All posts filed under: spoons

Anterior Cervical Discectomy & Fusion… and Phlegmy, Phlegmy Mucus

That’s an ominous title, isn’t it? BUCKLE UP, BUCKAROOS! FIRST OFF: I HAD SPINAL SURGERY, AND IT WAS TOTALLY WORTH IT. My first surgery wasn’t quite the success for which I’d hoped. I tried not to hope for this one, because I didn’t want to get my feelings hurt. Well, boys and girls, this one worked. It’s like the first time they dug around in my neck, they only pulled out half a rotting tooth before stitching me back up. The second surgery removed the rest of that festering, pulsating monstrosity and cleaned it out entirely. So, was it worth it? Heck yes.  HEY HEY, I HAD SURGERY I am now a bit more than one week post-anterior cervical discectomy and fusion. I had the same procedure as I did two years ago (ACDF, levels C4-C5 as opposed to the earlier C5-C6). It was the same hospital, even the same surgeon, and yet so many things were different. Round I was March 27, 2014. I remember four things vividly: the feeling of funny juice speeding through my body right …

The Quell Pain Relief Device: 8 Months Later

Hi, everyone. It’s been quite some time since I’ve shouted into the electronic void. I had such grand plans, too. At the end of 2015 I left my full-time job as an associate attorney. My bosses did so much for me, but the way our office was set up, having me work part-time just wasn’t possible. The month of December was my slow transition to working from home. I still have my freelance editing work, but primarily I am home. In my sweatpants. With my cat. I figured I would use this time to write a ton of blog posts, start my new website (to be formally announced at a later date), do yoga four times a day, walk an hour every day, finally go to the gym, hang out with my cat, wake up at 5 a.m. during the work week, do some personal writing for the first time in years, etc. I had grand, unrealistic plans. At the very least I still plan to discuss transitioning to working from home, but that’s not the point …

Accepting Limitations Caused by Chronic Pain & Illness

Yesterday, after much deliberation (far too much deliberation), I finally accepted the fact that I can no longer work a full-time job because of my chronic pain. My bosses did everything they could to work with me on a solution, but I cannot fundamentally perform the tasks required by my job. Driving to the office, sitting in a chair every day, and traveling to meetings was chipping away at me, little by little, breaking down any resilience I had left… which sounds absurd, doesn’t it? A sedentary job being too much for me? But it was, and it is. Even mitigating devices put in place (like a kneeling chair at my desk or taking breaks in a recliner in my office) wasn’t enough. Husband has been begging me for ages to put my health first, finances be damned, but I kept dwelling on the decision and driving him out of his mind with my constant “What if?”s (again, I am sorry, Husband). The reason for my very extended delay in making this transition was that it …

Maladaptive Memories (Or, How Your Body Just Won’t Let Go)

Is your memory just too good? I’m not talking about recalling what you ate for breakfast six Sundays ago or always knowing where you dropped your car keys. I’m referring to the body’s ability to remember everything that happened to it — for your entire life. We hear terms like “muscle memory,” but most of us have no reason to contemplate what that means. Well, let me enlighten you. Muscles remember a strength training routine far easier the second time around; say you start training, have a few weeks of vacation, and then start again because your clothes don’t fit after the annual Holiday Food Gauntlet. It is far easier to get back on the saddle the second time, and it takes less time to reach the same goals. This idea of the body remembering things has always stuck with me. Let’s say I took a tire iron to your knees on Thanksgiving, Nancy Kerrigan-style (stay with me). Once you get over the initial shock, pain, casts, surgery, rehab, soft casts, physical therapy, aqua therapy, and more — let’s say that …

Inflammatory Foods and Chronic Pain, Part II

Sorry for my lengthy absence; it’s been another one of those flares. Back to business as usual! I have discussed before how food can have a direct effect on what happens in the body. Use any cliched vehicle for this idea that you like — our bodies are temples, our bodies have engines that need pure fuel, our bodies don’t like toxins that gunk up the system. Basically, we are what we eat. Those suffering from chronic pain and illness already got the short stick, but 99 times out of 100, we are also told by doctors that we should follow some form of an “anti-inflammatory diet.” Now, I was tested for inflammation by a rheumatologist, and while it was higher than normal, it wasn’t stratospheric. That was how he ruled out arthritis (well, duh). So while my joints aren’t inflamed in a rheumatoid arthritis sort of way, I can definitely tell the days when my body as a whole is just… blegh. Like this morning, for instance! I spent last night pigging out. I’d had …

Guest Post: The Social Lives of Spoonies

Today we have a guest post from the lovely Anna of Migraine Brainstorm. Anna has been a spoonie for three years, suffering from chronic migraines.  However, when she isn’t in pain, she teaches English, crafts, paints, and writes. Check out her work on Twitter, Pinterest and Instagram, and contact her by email: anna@migrainebrainstorm.com. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do you find yourself on the couch most Friday nights? Perhaps conducting deep and lengthy conversations with a pet, or desperately searching for a new quality series on Netflix? Maybe you have cancelled plans to hang out with some ice packs, a heating pad, and a big fat pile of meds? Well, you are not alone! Er… except that you are, probably, literally alone. Chronic pain has the capacity to change every affect every aspect of a person’s life, and Friday nights are no exception. Before my extended run-in with pain, I happily maintained a robust network of friends. From besties to casual acquaintances and everything in between, I cultivated the full social calendar of an extrovert. I would happily invite 30-odd people to a party and …

Let’s Talk About The TENS Unit

I’m a huge advocate of clothing camouflage. Loose shirts and cardigans are great to hide a flabby stomach or that back-fat area around a tight bra strap; however, I’m wearing them to hide both a back brace and a TENS unit. (And the bra fat. Let’s be real.) Here’s me in my extremely stylish office bathroom: I usually only wear the TENS on occasions when my back pain is truly escalating and refuses to level off. This week has been particularly bad. The TENS is keeping me at a functioning level, considering I am backing off the Lyrica. The electrodes irritate my skin after more than one use, which is unfortunate, but the only cost-efficient way to use the device is to reuse the pads until the gel wears down and the pads electrocute you. Tiny shocks to be sure, but electrocutions nonetheless. Side note on the electrodes: Don’t go through the supplier from which you acquired the actual unit. My insurance company holds the very ridiculous philosophy that while they will cover the device, they will not cover the electrodes. Tufts, you silly company, …

I Make Pain Look Good.

Take a look at this person. Take a real good look. Then ask yourself: Is this person in pain? She looks fine, you think. She doesn’t have a handicap placard on her car. She doesn’t walk with a cane. She isn’t wearing a brace.  You furrow your eyebrows, and then you think: She looks totally normal.  The thing is that when this picture was taken, she was in a world of pain. She had three sort-of healed spinal fractures and a calcified nerve cluster. Even though she was smiling under the artful disguise of Microsoft Paint, she was hurting. She was wearing a back brace under that dress. She changed into flats as soon as that picture was taken. She found a place to sit down and close her eyes, trying to match her inhales and exhales to the thud-thud-thudding of her spasming muscles. She had her special dichroic glass pill case in her handbag filled with Tramadol, Nabumetone, and Vicodin. She had already calculated how long she could stand being upright and the time it would take to get back to …

Word War Won: “Victim” vs. “Survivor” vs. “Thriver”

I was going to talk about different words during this edition, but Alexis got me thinking. We had a very uncomfortable session the other day during which she asked me how things are going now that I’ve cut out sugar and alcohol. It started last week when we had a Skype session and she saw my face. She said I needed to do a detox. Immediately. I felt slow and inflamed, my brain was foggy, and even my face looked puffy. I’d gone to a small law school reunion/memorial for my friend Andy and saw surprise on my classmates’ faces; the last time they saw me was thirty pounds ago. (Granted, some of that weight gain was necessary at the time since I was an anthropomorphic coat hanger, but do you know how hard it was just now to type “thirty pounds ago”?) My pain was worsening. I’d been gaining weight despite exercising every day, thanks to my medication increasing my appetite to that of a starving boat wreck survivor. I’d binge in the evenings after work, thinking I deserve this as I snatched …