All posts filed under: invisible illness

A Look at “Zero to Hero” When You Feel Like a Zero

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I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “You get to work from home! That’s so great!” Whenever people say that, I never know how to respond. Like, yeah, of course, it’s great to be home all the time… I guess. I forget what day of the week it is. I wear sweatpants. I shower when I want to shower. I work in the living room from my recliner or in the office, whichever is more comfortable. The television is on for “background noise.” I keep the cat and bunny from murdering each other. I also have very little human interaction other than Slack, Gchat, Facebook, or email. I’m a slave to the elements, meaning my Quell says, “Today’s weather may worsen your pain. Consider increased Quell use.” I’ve gotten that warning for the past two weeks straight. If it’s cold or raining, I stay …

Pain Awareness Month 2017

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Hello there, my lovelies! It’s September 1st, and you know what that means — and if you don’t, let me drop some knowledge on you. It’s Pain Awareness Month!   *Sound the trumpets* Yes, it is the month that those of us with chronic conditions have taken as our own to raise awareness of our maladies. Naturally I won’t be here for the Boston Abilities Expo (gotta celebrate my dad’s birthday!), but there are plenty of things happening this month, and the U.S. Pain Foundation is keeping track of many goings-on, like fundraisers, the 30-day challenge (follow @US_pain on Twitter and @USPainAwarenessMonth on Instagram for this year’s challenge), proclamations, etc. You can even change your profile picture on Facebook to raise awareness, since many of the most common pain conditions are invisible to the eye. So that’s cool! Keep on the lookout for Pain Awareness Month-related things and see if there is a family member or friend you can help. Also, side note, I was featured on Dr. Melissa Cady’s “Pain Out Loud” blog, though …

Do We Lose Our Dreams with Chronic Illness?

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Today we have a guest contribution from the lovely Crys Baysa! *** Chronic illness is hard enough as it is. But even worse, the things we used to do, we can’t do anymore. Suddenly, hanging out with people is hard, doing your job is nearly impossible, and understanding the things you’re trying to study is downright frustrating. It is in times like these that it’s easy to wonder if we’re ever going to be better again. ‘Am I going to be able to play my beloved violin again? The pain is too much!’ ‘Will I ever be able to memorize those formulas again? I can’t remember things and I want this degree badly!’ It’s not just the physical limitations that become more and more. It’s the emotional limitations. What Dreams Really Are Dreams are not just desires for the future. They’re expressions of ourselves. It doesn’t matter if it’s something like science, speech, or even simply sculpting a statue. It’s very much a part of who we are, and it’s an emotional release. When you …

Effective Alternative Therapies for Dealing with Chronic Pain

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We have another guest post from Jackie Waters of Hyper-Tidy.com!  There’s no silver bullet approach for dealing with chronic pain. Everyone’s pain is specific to them, and you can’t solve everything with a single pill or by eating more kale. A true holistic approach to chronic pain management will utilize a variety of coping methods. For some, the risk of developing dependencies to medication is enough reason to seek out alternative therapies for their pain. Others find that a combination of treatments works best for them. Some are still searching for the right treatment. Whatever the case, the good news is there are alternative treatments that show promise and are already being relied on by millions suffering from chronic pain. Add some specific foods to your diet Proper diet and exercise is vital for anyone suffering from chronic pain. It’s important to reduce refined carbohydrates, excess sugar, and caffeine. Do everything that you can to maintain a healthy weight, as obesity exacerbates most forms of chronic pain. But did you know that there are some specific foods …

The Quell Pain Relief Device: One Year Later

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One year ago today, a beautiful relationship between man and machine began. I shall weave my disclaimer into the story: This day last year, FedEx delivered the Quell pain relief device that I’d bought during their Indiegogo campaign. I hadn’t been contacted by the company to try it, and I paid for it with money that I earned. I keep several alerts on my news feeds, and I found it in a story about new medical devices that contained this slim, mostly unobtrusive wearable. It sounded too good to be true — it could produce endogenous opioids within my body, like natural versions of the medications I fought so hard each month to receive? All-over pain relief by wearing an electrode on the calf? I didn’t care if it sounded too good to be true. I had to try it. And I have tried it for approximately 350 out of the past 365 days. About one week of that was when I transitioned to a work-from-home situation. My routine was so interrupted that I simply …

Guest Post: Water Exercise for Chronic Pain Relief

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Chronic pain comes in many forms: aching in the joints, dull burning in the muscles, or shooting pains throughout the body. While some bodily pain after an injury or surgery is normal, pain that persists beyond average recovery time or that arises inexplicably is considered chronic. The National Institute of Health (NIH) defines chronic pain as “any pain lasting more than 12 weeks.” These pains can be sharp or dull, localized or felt throughout the body. The American Chronic Pain Association (ACPA) widely recommends exercise therapy, or “active therapy,” to increase the range of motion, strength, and flexibility and to enhance the quality of life. Though resting the body may seem like a tempting option, doctors have come to recognize that inactivity typically exacerbates symptoms. Dr. Edward Laskowski, a rehabilitation specialist at the Mayo Clinic, explains, “[w]hen you rest, you become deconditioned — which may actually contribute to chronic pain.” Whether you suffer from fibromyalgia, arthritis, migraines, Crohn’s Disease, multiple sclerosis, or another physically debilitating illness, remaining active is paramount to managing pain. Exercise for …

Does HFactor Hydrogen Water Actually Work for Fatigue, Recovery, & Energy Levels?

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Through my membership in the Chronic Illness Bloggers program, I am able to review products that normally I would never even see or — if I did see them in a store — think to buy. It’s exposing me to a world of items that I had not thought were remotely relevant to chronic pain and illness patients. Like, for instance, HFactor Water — infused with more hydrogen! NECESSARY DISCLAIMER: This is a sponsored post. I was given six Capri Sun-like packs of HFactor, as well as straws, through my membership in the Chronic Illness Bloggers’ network in exchange for my thoughts and opinions regarding the product. All opinions are my own, and besides the gift of the HFactor pouches, I have not been influenced by the company in any way.  Of course, water already has hydrogen, hence the H20 makeup. However, hydrogen-rich water is supposed to help a number of ailments ranging from diabetes to the side-effects of chemotherapy. Improvements have been confirmed by studies (this linked one is specifically on metabolic syndrome), but the benefits of hydrogen-rich water have not been …

Pain News Network: Media Hysteria and the Opioid Crisis

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Hello, my darlings! Check out my latest column for the Pain News Network! _________________________________________________________________ I recently received this email from a family member: Hi Jen, I was listening to a thing on pain medication and why prescription meds are so dangerous. They turn the receptors off in the brain and the person forgets to breathe.  That part is a totally separate thing from the pain. Dr. Sanjay Gupta was on talking about it. I think that is a very valid argument about overuse of pain meds. For example, Prince had very valid issues to use the meds and also lived a very clean life style. If he overused, it goes to follow that someone who doesn’t lead a clean lifestyle is in more danger. It’s not the meds as much as the brain receptors. The breathing part is scary. So I’m not such an advocate anymore…..unless you can tell me this isn’t true and why he would say that. I love you and don’t want anything to happen to you. Xoxoxox I got mad after …

The Pill Suite is Pretty Sweet

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If you’re like me (delightful, fierce, and bothered by various physical ailments), then you have a ton of pills. Let’s take a look at what I consume on a daily basis: Tramadol (50 mg every 4-6 hours as needed) Cymbalta (80 mg, 20 mg in the morning, 60 mg at night) Valium (5 mg, as needed) Zyrtec (every night for my Eosinophilic Esophagitis) Prilosec (40 mg per day) Carafate (two teaspoons 4 times a day) Calcium (RX-strength) Vitamin D3 (RX-strength) Vitamin K2 (RX-strength) …I’m honestly losing track. Here’s the nonsense I deal with each morning (and these are only the morning, I didn’t get a picture of the nightly regimen): I can organize the hoard pretty easily using one of these sweet babies: Those pill cases can be difficult when going somewhere overnight or for a few days. At this point I’m an expert at telling pills apart (and if I’m only 99 percent sure, I’ll Google it to be responsible), but it’s hard to say, “Okay, this group is for the morning, this group is for the …

Pain News Network: Recovering from Spinal Surgery

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Check out my latest column for the Pain News Network! For those of you playing the home game (i.e. following my blog), I’ve been recuperating from a cervical discectomy and fusion of C4-C5. That was February 19. I’ve been recovering in an amazing fashion, much faster than my first fusion of C5-C6. Just north of a month later, I also had thoracic injections at T-11 through L-1. I was far more scared of this procedure than the fusion — and I’ve had injections before, so it was nothing new. I knew exactly what was going to happen, but I didn’t know how my body would react. Why? Read on. My Abbreviated Back Story (No Pun Intended) My injuries have followed a strange road. When my mom’s car was stopped in traffic in 2004, we were rear-ended at 65 miles per hour. I was seventeen. I broke my spine in four places: T-11 through L-1, but also a facet joint that wasn’t found until a year later when it had calcified over a cluster of nerves. …