All posts filed under: invisible disability

A Look at “Zero to Hero” When You Feel Like a Zero

Published by

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “You get to work from home! That’s so great!” Whenever people say that, I never know how to respond. Like, yeah, of course, it’s great to be home all the time… I guess. I forget what day of the week it is. I wear sweatpants. I shower when I want to shower. I work in the living room from my recliner or in the office, whichever is more comfortable. The television is on for “background noise.” I keep the cat and bunny from murdering each other. I also have very little human interaction other than Slack, Gchat, Facebook, or email. I’m a slave to the elements, meaning my Quell says, “Today’s weather may worsen your pain. Consider increased Quell use.” I’ve gotten that warning for the past two weeks straight. If it’s cold or raining, I stay …

Pain Awareness Month 2017

Published by

Hello there, my lovelies! It’s September 1st, and you know what that means — and if you don’t, let me drop some knowledge on you. It’s Pain Awareness Month!   *Sound the trumpets* Yes, it is the month that those of us with chronic conditions have taken as our own to raise awareness of our maladies. Naturally I won’t be here for the Boston Abilities Expo (gotta celebrate my dad’s birthday!), but there are plenty of things happening this month, and the U.S. Pain Foundation is keeping track of many goings-on, like fundraisers, the 30-day challenge (follow @US_pain on Twitter and @USPainAwarenessMonth on Instagram for this year’s challenge), proclamations, etc. You can even change your profile picture on Facebook to raise awareness, since many of the most common pain conditions are invisible to the eye. So that’s cool! Keep on the lookout for Pain Awareness Month-related things and see if there is a family member or friend you can help. Also, side note, I was featured on Dr. Melissa Cady’s “Pain Out Loud” blog, though …

I am Not the Reliable One — Also, a Book Review: “Kicking Sick” by Amy Kurtz

Published by

I am not the reliable one. I recently made friends with a guy who has stage 4 colon cancer. By chance, we were sitting next to each other while waiting for a flight back to Boston from Atlanta. The flight was delayed by two hours, and his soul spoke to mine. We became friends in less than 20 minutes. Just one of those things, I guess. When his phone rang, it said, “God’s gift to women, pick up!” It was his mom, an older lady with a glorious halo of gray hair. She was delightful. She knows my name, knows all about me now. His whole family knows who I am. He wants to talk more often than I talk to most people. More than I talk to my family, even. I’m not used to it. And the thing is, he might literally die before I get the chance to speak to him again. He slipped into a coma and came out of it while I was in a pain flare, and I had no …

The Quell Pain Relief Device: Entering the Third Year

Published by

Here we are again, folks. We’re entering the third year (since I can’t do math), and I am still using the Quell pain relief device (give or take two weeks when I forgot to wear it because my schedule was so disrupted that I forgot). Five bands, who knows how many electrodes — both normal and the new sport model, which I very much prefer in these extremely humid summer months — and two Quell models later, we’ve made it to this point. Well, I still like the Quell! At one point before I upgraded to the new model, I feared that either my pain was getting worse or I was becoming sensitized to the electric current. Turning it up didn’t help, but I still couldn’t go without wearing it for very long before I was overcome with pain. That has been my overall plan, you know. To eventually go without wearing it, trying to set myself to absolute zero to see what my pain really is. I’ve been throwing medication at my pain since …

Effective Alternative Therapies for Dealing with Chronic Pain

Published by

We have another guest post from Jackie Waters of Hyper-Tidy.com!  There’s no silver bullet approach for dealing with chronic pain. Everyone’s pain is specific to them, and you can’t solve everything with a single pill or by eating more kale. A true holistic approach to chronic pain management will utilize a variety of coping methods. For some, the risk of developing dependencies to medication is enough reason to seek out alternative therapies for their pain. Others find that a combination of treatments works best for them. Some are still searching for the right treatment. Whatever the case, the good news is there are alternative treatments that show promise and are already being relied on by millions suffering from chronic pain. Add some specific foods to your diet Proper diet and exercise is vital for anyone suffering from chronic pain. It’s important to reduce refined carbohydrates, excess sugar, and caffeine. Do everything that you can to maintain a healthy weight, as obesity exacerbates most forms of chronic pain. But did you know that there are some specific foods …

Everybody Has Something Wrong With Them

Published by

Everybody has something wrong with them. I don’t care who you are or how many marathons you’ve run or how loud you are about it, but literally everybody on this planet, no matter how young or old, has something inside that is actively working against them. That young boy bicycling to school has Type I diabetes. The teacher shepherding students into the classroom has arthritis. The school bus driver has sciatica that runs down her right leg. The mailman has a limp because his hip gave out after twenty years of walking his route. The old woman shuffling down the sidewalk has cataracts, rheumatoid arthritis, and skin cancer from the days of tanning with baby oil. If something isn’t wrong with us when we’re born, something will go wrong. As soon as we are born we start to die, and little chips of us are broken away year after year by means of illnesses and sprains and accidents and cancers. Some people don’t even know anything is wrong yet. Two guys see their coworker struggling …

ChronicBabe: 5 Reasons Why Leaving My Job and Working From Home Was The Best Decision I Ever Made

Published by

Check out my guest post for Jenni Grover Prokopy’s site, ChronicBabe! Hi! My name is Jen, and I’m a 29-year-old attorney, editor, writer, and patient advocate. I have spinal fractures from two car accidents that required two cervical fusions. The jury’s out on whether I’ll need more surgery. I worked in an office for three and a half years after law school. At that point I was dealing with the fallout from my first car accident, which happened in 2004 and decimated my thoracic spine. Law school happened, and then my job, and then… another accident. That second accident became a barrier to a normal life. Eventually I decided to leave my job and work from home. Here are the reasons why it was the best decision I ever made. My health comes first now. I was living the dream: I had a legal job that started at 8 am, ended around 6 pm, had great coworkers, and allowed for a life. My bosses were cool. During my second year, however, I had another car accident. …

The Quell Pain Relief Device: One Year Later

Published by

One year ago today, a beautiful relationship between man and machine began. I shall weave my disclaimer into the story: This day last year, FedEx delivered the Quell pain relief device that I’d bought during their Indiegogo campaign. I hadn’t been contacted by the company to try it, and I paid for it with money that I earned. I keep several alerts on my news feeds, and I found it in a story about new medical devices that contained this slim, mostly unobtrusive wearable. It sounded too good to be true — it could produce endogenous opioids within my body, like natural versions of the medications I fought so hard each month to receive? All-over pain relief by wearing an electrode on the calf? I didn’t care if it sounded too good to be true. I had to try it. And I have tried it for approximately 350 out of the past 365 days. About one week of that was when I transitioned to a work-from-home situation. My routine was so interrupted that I simply …

Guest Post: Water Exercise for Chronic Pain Relief

Published by

Chronic pain comes in many forms: aching in the joints, dull burning in the muscles, or shooting pains throughout the body. While some bodily pain after an injury or surgery is normal, pain that persists beyond average recovery time or that arises inexplicably is considered chronic. The National Institute of Health (NIH) defines chronic pain as “any pain lasting more than 12 weeks.” These pains can be sharp or dull, localized or felt throughout the body. The American Chronic Pain Association (ACPA) widely recommends exercise therapy, or “active therapy,” to increase the range of motion, strength, and flexibility and to enhance the quality of life. Though resting the body may seem like a tempting option, doctors have come to recognize that inactivity typically exacerbates symptoms. Dr. Edward Laskowski, a rehabilitation specialist at the Mayo Clinic, explains, “[w]hen you rest, you become deconditioned — which may actually contribute to chronic pain.” Whether you suffer from fibromyalgia, arthritis, migraines, Crohn’s Disease, multiple sclerosis, or another physically debilitating illness, remaining active is paramount to managing pain. Exercise for …

Does HFactor Hydrogen Water Actually Work for Fatigue, Recovery, & Energy Levels?

Published by

Through my membership in the Chronic Illness Bloggers program, I am able to review products that normally I would never even see or — if I did see them in a store — think to buy. It’s exposing me to a world of items that I had not thought were remotely relevant to chronic pain and illness patients. Like, for instance, HFactor Water — infused with more hydrogen! NECESSARY DISCLAIMER: This is a sponsored post. I was given six Capri Sun-like packs of HFactor, as well as straws, through my membership in the Chronic Illness Bloggers’ network in exchange for my thoughts and opinions regarding the product. All opinions are my own, and besides the gift of the HFactor pouches, I have not been influenced by the company in any way.  Of course, water already has hydrogen, hence the H20 makeup. However, hydrogen-rich water is supposed to help a number of ailments ranging from diabetes to the side-effects of chemotherapy. Improvements have been confirmed by studies (this linked one is specifically on metabolic syndrome), but the benefits of hydrogen-rich water have not been …