All posts tagged: chronic illness

Pain News Network: Media Hysteria and the Opioid Crisis

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Hello, my darlings! Check out my latest column for the Pain News Network! _________________________________________________________________ I recently received this email from a family member: Hi Jen, I was listening to a thing on pain medication and why prescription meds are so dangerous. They turn the receptors off in the brain and the person forgets to breathe.  That part is a totally separate thing from the pain. Dr. Sanjay Gupta was on talking about it. I think that is a very valid argument about overuse of pain meds. For example, Prince had very valid issues to use the meds and also lived a very clean life style. If he overused, it goes to follow that someone who doesn’t lead a clean lifestyle is in more danger. It’s not the meds as much as the brain receptors. The breathing part is scary. So I’m not such an advocate anymore…..unless you can tell me this isn’t true and why he would say that. I love you and don’t want anything to happen to you. Xoxoxox I got mad after …

Pain News Network: Aroga Yoga

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Here’s my newest column for the Pain News Network! One of the most popular remedies that pain management doctors like to recommend for patients is yoga. Not only has yoga created a revolution in the fitness and apparel worlds, but it also is touted as a great way for chronic pain patients to exercise. This generally leaves us patients in a strange spiral of “I hurt too much to work out” and then feeling worse because we aren’t moving. Physical activity is necessary in whatever form we can manage. I have several instructional DVDs, but only a few of them are actually tailored to people with illness and pain. I decided to go hunting for the Big Kahuna. My search was not in vain: I discovered Kayla Kurin, creator of Aroga Yoga. “Aroga,” which I thought was just a great rhyme, actually means “healthy, well, or free from disease.” Ms. Kurin is a yoga teacher based in London who focuses exclusively on chronic pain and illness, as she uses it to manage her own chronic fatigue …

Learning About Chronic Pain Prevention With MOOCs

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Let’s get this started with a quote from the MOOC in question: “It’s very difficult to completely get rid of chronic pain if you don’t successful manage it in the first thirty days.” — Dr. James Fricton Well, no wonder I’m f**ked. I have never successfully completed a MOOC, or massive open online course, but of course this topic struck a chord: Preventing Chronic Pain: A Human Systems Approach, which is being offered through the University of Minnesota. The first week’s lesson was just released, so I am settling myself in for this 10-week course to see how this pain researcher and professor, Dr. James Fricton, can offer me new and unique ways to prevent my pain from getting worse. Imagine my surprise when I see that the suggested course reading is a mystery novel — that he wrote! As he explains in the introductory video, Dr. Fricton started writing a book because he wanted to explain these preventative concepts as he’d come to learn them; then he realized that there was more of a story to be …

When is a Flare More Than a Flare?

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I’m writing this while wearing my neck TENS unit that also has electrodes snaking down to my shoulders. I have been in a pain flare for weeks. We are talking days upon days of pure, undiluted flare. I can’t remember the last time I felt this rocky for so long. My absence from this blog has been spent just trying to get through the work day without being crushed by my own body. I broke down and took the heavy medications I save for truly bad days, and they did nothing to relieve the pressure. All three levels of my spine are throbbing with different ailments: tension and shooting pain in my neck, head, and shoulders; pulsing rib pain around my trunk; and rickety bones setting off sciatic jolts in my hips and legs. Is it the heat? The constantly-changing weather? The humidity? Work stress? Sitting for too long? Inhaling while turning too quickly? Who the hell knows. What does it mean to flare? A flare is when your normal pain suddenly magnifies for whatever reason. Breakthrough pain occurs …

Pain News Network: Rating the Pain Creams

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Here’s my most recent column for the Pain News Network!  I am a connoisseur of pain creams. My idea of Christmas is when my friend’s mom mailed me a box filled with unopened packages of Bengay (true story). Every morning I slather on a layer of something containing menthol in order to numb my back. Then my cat decides to attack me. Why? Because cats love menthol (also a true story). Anyway, I have tried many, many, many different topical anesthetics over the years. Here are my experiences with the common and unique brands: Bengay: The gold standard. Whenever I use this brand, I generally gravitate toward the pain relief massage gel. However, my friend’s mom sent me the regular Bengay. What, you thought I was kidding? Here’s a picture of my Bengay drawer. There’s no doubt about it: Bengay is good. However, even the massage gel only contains 2.5 percent menthol, which is the active ingredient that transports your skin to the Arctic. It also has camphor, like what’s used in Vick’s VapoRub, to reduce …

Do You Want to Get Better?

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Do you want to get better? It’s a simple question, but many patients find it almost impossible to answer. It is part of the reason why a great number of doctors are hesitant to prescribe medication that patients need. They don’t want to enable irresponsible behavior. They are worried about what psychiatrists call “secondary gains.” And what are secondary gains? Well, it’s not fun being a chronic pain patient. All of us know that. But you know what? You deserve to stay home from work. You feel disgusting, like a nuclear wasteland. Why should you have to go to work? In fact, why should you be required to have a job at all when you feel like death all the time? If anyone deserves disability payments, it’s you. And you know what else? Sometimes you really need an excuse to get out of social obligations. “Oh, sorry, I’m not feeling well. Maybe next time.” Except “next time” turns into ice cream and binge-watching Netflix. The worst part is that you might not even realize you’re doing it. So much of pain is …

Pain News Network: The Biomat

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Check out my new Pain News Network column on the Amethyst Richway Biomat! Some pain relief modalities are unusual to the point that they’re out in the stratosphere. It’s also true that some products only work for some people. Just because a device doesn’t offer visible results the first, second, or even third time doesn’t mean it isn’t working. That is why I have to keep an open mind and not make snap judgments based on concepts, websites, or promotional material. Like, for instance, today’s topic: thermotherapy and the Amethyst Richway Biomat. Amethysts? Yes, amethysts — February’s birthstone — can also be beneficial in thermotherapy. When speaking specifically about the Biomat, I should warn you that Richway’s website isn’t slick. The idea of amethysts being associated with anything health-related is out of most people’s comfort zone. But hey, I’ve used the Biomat for upward of five years and fall onto it whenever I have sore muscles, which is constantly. It’s such a fixture in my life that at first I didn’t even think to discuss …

Guest Post: The Social Lives of Spoonies

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Today we have a guest post from the lovely Anna of Migraine Brainstorm. Anna has been a spoonie for three years, suffering from chronic migraines.  However, when she isn’t in pain, she teaches English, crafts, paints, and writes. Check out her work on Twitter, Pinterest and Instagram, and contact her by email: anna@migrainebrainstorm.com. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do you find yourself on the couch most Friday nights? Perhaps conducting deep and lengthy conversations with a pet, or desperately searching for a new quality series on Netflix? Maybe you have cancelled plans to hang out with some ice packs, a heating pad, and a big fat pile of meds? Well, you are not alone! Er… except that you are, probably, literally alone. Chronic pain has the capacity to change every affect every aspect of a person’s life, and Friday nights are no exception. Before my extended run-in with pain, I happily maintained a robust network of friends. From besties to casual acquaintances and everything in between, I cultivated the full social calendar of an extrovert. I would happily invite 30-odd people to a party and …