All posts filed under: nerve pain

Pain News Network: Aroga Yoga

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Here’s my newest column for the Pain News Network! One of the most popular remedies that pain management doctors like to recommend for patients is yoga. Not only has yoga created a revolution in the fitness and apparel worlds, but it also is touted as a great way for chronic pain patients to exercise. This generally leaves us patients in a strange spiral of “I hurt too much to work out” and then feeling worse because we aren’t moving. Physical activity is necessary in whatever form we can manage. I have several instructional DVDs, but only a few of them are actually tailored to people with illness and pain. I decided to go hunting for the Big Kahuna. My search was not in vain: I discovered Kayla Kurin, creator of Aroga Yoga. “Aroga,” which I thought was just a great rhyme, actually means “healthy, well, or free from disease.” Ms. Kurin is a yoga teacher based in London who focuses exclusively on chronic pain and illness, as she uses it to manage her own chronic fatigue …

Pain News Network: Rating the Pain Creams

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Here’s my most recent column for the Pain News Network!  I am a connoisseur of pain creams. My idea of Christmas is when my friend’s mom mailed me a box filled with unopened packages of Bengay (true story). Every morning I slather on a layer of something containing menthol in order to numb my back. Then my cat decides to attack me. Why? Because cats love menthol (also a true story). Anyway, I have tried many, many, many different topical anesthetics over the years. Here are my experiences with the common and unique brands: Bengay: The gold standard. Whenever I use this brand, I generally gravitate toward the pain relief massage gel. However, my friend’s mom sent me the regular Bengay. What, you thought I was kidding? Here’s a picture of my Bengay drawer. There’s no doubt about it: Bengay is good. However, even the massage gel only contains 2.5 percent menthol, which is the active ingredient that transports your skin to the Arctic. It also has camphor, like what’s used in Vick’s VapoRub, to reduce …

Pain News Network: The Quell Pain Relief Device

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Pasted below is the content of my first column as a regular contributor for the Pain News Network! When presented with the Quell pain relief device, people make one of two assumptions about me: 1.) I injured my knee, or 2.) I am a paroled felon wearing a very forgiving Velcro GPS. As I said in my recent guest column, I have made it my mission to test as many pain relief products and therapies as possible. Some of them might be familiar to you; others will be of the “new and bizarre” variety. Whatever they are, I will be your Friendly Neighborhood Guinea Pig and review them for your convenience. I only draw the line at “Made for TV” products that are out to swindle the desperate consumer. Pain patients are certainly desperate. We have a constant refrain humming through our bodies that plays a different tune for each person. Doctors are the musicians taught to hear those tunes — but how can they possibly learn all the music? How can they hear your …

Thoughts on the Quell Pain Relief Device

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I have now been using the Quell pain relief device for 15 days. Here are my initial thoughts: I definitely notice when I am not wearing it. Last week I was on the beach in Cape Cod with the in-laws for an afternoon, so I didn’t put it on for fear of ugly tan lines. I crashed as soon as I got back to the hotel. My pain quieted within 20 minutes when I started wearing the Quell again. While it can be tolerated on a 24-hour basis, I have been wearing the Quell only during the daytime. My pain is better when I’m flat on my back (once I take some tizanidine, anyway). I attempted to wear it one night and found the vibration, even in nighttime mode, too distracting. On the plus side, Husband could not feel the vibration on his side of the bed, so it won’t disturb any partners. For not wearing it 24-hours a day, the electrodes wear down at a rapid rate. After five days bits of the gel came off and stuck to my …

Piss Off, Pain Management Clinics

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“You have exhausted all of your options.” That is what I was told yesterday when I was denied as a new patient at Massachusetts General Hospital. Western medicine has officially given me the heave-ho. Because I have a “long-standing relationship with another pain management clinic,” unless I am being referred for a specific procedure that my current doctors do not have, I am not allowed to become a patient elsewhere. It’s so strange to reach the end of the road. It’s one thing to be told that the doctors are running out of ideas; it’s another thing entirely to have someone tell you that there is literally no other procedure in existence. All the treatments they are willing to try have been attempted. Science and research have not caught up yet. This is as good as it’s going to get. What they’re willing to try. That’s the operative phrase here. Despite my decade of experience in the medical system, despite never exhibiting pill-seeking behavior, my pain management doctors refused to prescribe any kind of opioid safety net. If …

The Quell Pain Relief Device: Living Up to Its Label?

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My long-awaited Quell pain relief device has finally arrived! As soon as I saw the FedEx truck rumble by, I heaved myself out of my chair and hurried to the front door, hoping to see that plain, unassuming box sitting on the front step. There it was, as I’d dreamed for months. I basically ripped it open with my teeth. I backed the Quell IndieGogo the moment I discovered it during the winter; it had already tripled its $100,000 goal. At this point my fairly useless pain clinic says I have exhausted most of my options in terms of what they can provide, unless I want to try an IV lidocaine/ketamine mix. I had the IV lidocaine infusion two weeks ago, and the aftermath was nothing short of a pain-riddled disaster. I’m grasping at straws here. Quell makes grand promises in its sleek promotional video. As PSFK said: TENS systems aren’t new in the market but Quell’s prescription-free, user-friendly and discrete approach is special. The Quell, no matter where the body pain is, could be left strapped at the calf where …

Names Have Power: a Discussion About Labels and Chronic Pain Patients

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I have long believed in labels. If there is a name for what I am experiencing, I am better equipped to fight it. If I know what I am, I can deal with the world appropriately. Names have power. That’s what Neil Gaiman’s version of John Constantine said. He said it for different reasons and toward a different end, but the fact remains: Names have power. I have collected labels and names over the course of my life: allergic to food/has eosinophilic esophagitis/is a good student/played tennis/played the violin/writes novels/is a lawyer/is disabled/is a chronic pain patient. I define myself by what I do and what I experience. The names are like a shield. A medical ID bracelet naming my allergies makes me feel special and fragile like a unique little glass-winged butterfly, and more than that, it’s a story. I love to tell stories. A scar on my throat is a symbol that others recognize. I have been broken apart and welded back together. I have been remade. So now I face a dilemma because the …

Let’s Talk About The TENS Unit

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I’m a huge advocate of clothing camouflage. Loose shirts and cardigans are great to hide a flabby stomach or that back-fat area around a tight bra strap; however, I’m wearing them to hide both a back brace and a TENS unit. (And the bra fat. Let’s be real.) Here’s me in my extremely stylish office bathroom: I usually only wear the TENS on occasions when my back pain is truly escalating and refuses to level off. This week has been particularly bad. The TENS is keeping me at a functioning level, considering I am backing off the Lyrica. The electrodes irritate my skin after more than one use, which is unfortunate, but the only cost-efficient way to use the device is to reuse the pads until the gel wears down and the pads electrocute you. Tiny shocks to be sure, but electrocutions nonetheless. Side note on the electrodes: Don’t go through the supplier from which you acquired the actual unit. My insurance company holds the very ridiculous philosophy that while they will cover the device, they will not cover the electrodes. Tufts, you silly company, …

I Make Pain Look Good.

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Take a look at this person. Take a real good look. Then ask yourself: Is this person in pain? She looks fine, you think. She doesn’t have a handicap placard on her car. She doesn’t walk with a cane. She isn’t wearing a brace.  You furrow your eyebrows, and then you think: She looks totally normal.  The thing is that when this picture was taken, she was in a world of pain. She had three sort-of healed spinal fractures and a calcified nerve cluster. Even though she was smiling under the artful disguise of Microsoft Paint, she was hurting. She was wearing a back brace under that dress. She changed into flats as soon as that picture was taken. She found a place to sit down and close her eyes, trying to match her inhales and exhales to the thud-thud-thudding of her spasming muscles. She had her special dichroic glass pill case in her handbag filled with Tramadol, Nabumetone, and Vicodin. She had already calculated how long she could stand being upright and the time it would take to get back to …