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Paying extra to live my life – Jean’s story

Truth to this — I can only itemize so many medical deductions on my income tax return before I risk getting audited.

Scope's Blog

Jean is 34 and has Ehlers-Danlos syndrome, which means her joints dislocate easily and she is in a lot of pain.

“I came home from work one day, fell over, was taken to hospital because I couldn’t get back up. I came out of hospital a week later in a wheelchair,” she says.

Jean, who lives in London, wants to get on and live her life – and for the seven years since she was diagnosed she has been trying to do just that. But she faces a huge range of extra costs relating to her condition, leaving her out of pocket.

Many of them aren’t obvious. Things like adapted cutlery and kitchen equipment are vastly more expensive than an ordinary set.

“I am supposed to have specialist knives to help me with preparing veg and things like that – with the handle at a 45 degree angle –…

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1 Comment

  1. I completely understand how hard living with a disability and being forced to have to go on disability. I hope and pray that more people and more politicians all around the world realize this and change things for the better.

    Like

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